Support group for individuals,families,friends and carers affected by Gorlin Syndrome
Conference Coordinator volunteer
Working in conjunction with the Gorlin syndrome group charity trustees. https://gorlingroup.org/
We hold an annual patient conference for patient, families and carers of individuals with Gorlin syndrome, and are looking for someone who has the passion and skills to work with the trustees, to help us organise and deliver our conference in Spring 2020.
This will include designing and delivering a survey of members to shape the agenda,then to coordinate the delivery of the conference.
There is no registered office, the trustees work from home or meet locally in the Manchester area.
Working from home, and via Skype or face to face in local area. Travel expenses available
1-4 hours per week